Friday, July 6, 2012

Update on Patrick and Brady

Good morning all. Last night was a rough one for us. We were able to get a little bit of sleep, but what sleep we had was not great. It was chock full of nightmares about the boys, so we are a little tired today. We called for an update this morning, and they called us with news this afternoon.

Patrick
Patrick is doing as well as he can be. His blood cultures came back positive, which we knew that it would, but it still sucks. So he is going to continue on the antibiotics as planned. He is getting platelets and plasma now. They also said that he has blood in his urine now. It could be because of the low platelets. They are going to get a urine culture to be sure its okay. He received his renal dose of Dopamine last night. He was not really urinating last night, which they said was unusual for him, but did pee a lot this morning. He is back on the oscillator, they say he does well on it. I do not know if he had a follow up x-ray today yet.   I want to hold him so bad to comfort both of us, but it's probably better that I haven't had the chance to yet, because I think this would be ten times worse.

Brady
Brady is doing okay as well. They heard some wheezing last night so they gave him a dose of Albuterol.  They are also running a bunch of cultures on him to make sure he is not developing anything like Patrick. It is just for safety, but they want to catch it right away just in case.

Mommy and Daddy
Mommy and daddy are having a rough day, and basically have no idea what to do with ourselves when we are home. Our stomachs, collectively, are a mess, and gurgles can be heard from across the room. I would like to drink an entire bottle of Maalox or eat all of my Zofran/Ranitidine. Right now I am soothing it with food, and bread.  I am also snuggling with Steiner more than ever. He will hate me by the end of this. We are going to head in to see them soon. Hopefully we will have some better news. I know that they said there will be ups and downs, and some days are great, and some days you want to cry and scream. I was hoping after the bleeds and murmurs we would get a little break. At least for a week or two. What doesn't kill you makes you stronger right?  We will be doing extra praying tonight!

Em and Craig

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