Patrick
Patrick was quiet tonight. He seemed nice and snugly in his little bed. Craig did his diaper change, and I did the face cleaning, and lotion. Tried to fix his hair tonight. Had to comb it forward again because the front half is thin. I am calling the hairstyle "The Costanza." His Fentanyl is at 1 tonight. I forgot to look at his O2 settings, and Craig is sleeping so I can't ask him. I think it was at a normal setting. He was 1 lb 15 I think tonight. He did get Lasix tonight, and he will get 3 more treatments. He is getting a ultrasound tomorrow to check his swelling. The doctor said during rounds tonight that his fontanel seemed a little large. They haven't mentioned that before, so I was like what? He needs more problems, right? Hopefully his scan will come back with some better news tomorrow. He is also getting a chest/abdomen x-ray. If the x-ray is clear, they will start feedings. I am praying for good results on all of his tests.
How cute is that little noggin?
Sleeping during diaper change
Flexing for my nurse!
Brady
Brady is doing okay also. he is still getting his 5 ml/hr feeds. They have turned down his vent settings, and he is taking some breaths on his own. he did not want his tube in to night and he was very annoyed. When we started to do his hands on, we tried to flip him over. He had some sticky residue on his cheek from when they replaced his tube tape. His face was stuck to the blanket, and his nurse had to peel it off. He was not happy. He did alright though, until daddy had to pull some tape off his armpit. If he didn't have a tube in, he would have cried. They are going to turn down his vent again tonight if his blood gases are okay. he will also get a brain scan tomorrow. He weighed 2 pounds tonight, I believe. He is off all of his extra meds. His nurse said we might be able to start kangaroo care, which is where me and Craig can actually hold them to our skin. I have been waiting for this day forever. I can't wait to hold my little Patrick too. Did you ever see that one picture of a friend or family member that just had a baby. It's that picture of them looking into their babies face with such love and affection, that you just can feel the emotion in it. I am desperate for that moment. It never once passed through my mind during my pregnancy that I wouldn't be able to touch our children, or not be able to hold them. If you are reading this and you have children, go hug them...right now..it's okay, I'll wait for you to come back. I can only imagine that it is the best feeling in the world. I am hoping that will be us soon.
He loves his belly time.
Pray for good results tomorrow! We want clean x-rays and brain scans!!
Good night all. I am desperate for some sleep...
Em and Craig
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