Brady
Brady slept the whole time we were there tonight. He opened his eyes halfway for me, but his eyes were all over the place like he was dreaming. I let him sleep. He is back on one of his photo therapy lights because his Billirubin went up a little. They say that is to be expected. He did get blood this morning. They also started feeding him today. He even received more than his brother already. His nurse let me feed him tonight. He had 1 ml of breast milk. Depending on how well he does with that, they might start him on a milk cri (constant rate infusion) tomorrow. It will still be a very small amount, but it will be on a pump. They did confirm that his PDA was very small, and the nurse said that she didn't hear it anymore. She said for sure she could before. This was great news for me. He worries me sometimes. He is much quieter than his brother, which is good, since they are not supposed to be moving. The fact that he doesn't move a lot freaks me out a little. I kind of always think of him as the tough one, but these last few days I feel like he has made me worry more. The doctor said he is doing well though.
Patrick
Patrick is off of the Oscillator, and on a regular vent. His blood gases weren't the greatest overnight, so they had to mess with his O2. They seem to have it under control tonight. While doing rounds, the doctor said that he was thinking they should turn down his pressure a little. The resp. therapist was there and he said "Let's give him a day to relax." I agreed. They compromised on turning his pressure down by one. He had a transfusion early this morning. Craig got to feed him. He was moving all around tonight. He kept waving hello.
They said that they are doing good so far, knock on wood. We were able to talk to the doctor for some updates. One thing that I really like about this place, is that the when the doctors do the rounds, they include you in it. They have a head nurse, a resp. therapist, and two other people that they do rounds with. If you are there, they will talk to you while they are rounding, so they are updating you on their condition, but also letting you know the reasons why they are doing what they are doing. They don't just ignore you and talk over you while you visit. Two or three of them will say hello, shake hands, and go over test results with you, and give you the next step in treatments. It really makes this whole thing easier, and they always make sure they ask if we have any questions, and go over anything that we might need to know. I really love this place. I hope that none of you ever have to be in the position where you have to be there, but if so, they are amazing. I know that the boys have great care right now.
Tomorrow will be there first holiday! Hopefully they will have a good day.
Em and Craig
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