Patrick's test results

Hi everyone, how are you? Well, it's been a rough time for Patrick in the NICU. His results came back for his Urinary Tract infection on Saturday. It came back positive which means he is there for 10 days after the negative culture comes back. They took another culture on Sunday, and that one came back negative which is good. We caught it just in time. They also took a blood culture, that came back negative, which is great. That saves him a 21 day stay. That being said, we had more drama, or I guess not drama.... Somehow, and we have no idea who, what, or when it was brought up, his cardiologist saw him. We don't know if she was just down there looking at other patients, and she noticed he was there, or if she was called. When Craig got in last night, he headed back to his bed. The day nurse stopped him, and told him to prepare himself..he is on a nasal cannula. Are you freaking kidding me?! What happened?  His nurse said that she doesn't know. She said that she came in, and he was on a cannula again, but she doesn't know why, because his saturation levels were high for her all night. So what is the deal? I guess the cardiologist looked at him, and wanted to try a little test with him.She called this morning to tell me the deal. She did an echo on him , and said that he had pulmonary hypertension. I guess his heart went through changes because of the urinary tract infection. She wanted to make sure that he wasn't septic. She put him on oxygen to see if the problem would go away. If it didn't go away, then he could potentially have right sided heart failure. If it does go away, then the heart murmur he has is fixable, and that is good news. At least that is how I understood it.  She said that she put him on oxygen overnight to basically prevent a problem, and to help with his lungs and heart. She said that she wanted to monitor it for 24 hours to see how the heart and lungs responded. She called this morning and said that she is very pleased with the results. She said that the heart was working correctly, I guess the blood or something is going from left to right like it should be. I know I am describing his in the worst possible way, but I was a slight mess last night as Craig texted me about this, and was so tired/happy when she called, that I listened, but it all went away as I crashed back to sleep again. Work with me here folks. Anyway, she is happy with what she saw. I guess that on the oxygen, she saw a difference in the heart, and the way it was functioning which is good, and that basically means that his heart murmur is fixable, if she needs to go in and fix it. She said that he was off oxygen as soon as the echo was done. She gave the nurses orders to monitor his saturation when he sleeps, and when he eats. It should stay high, and if it doesn't then she might send us home with a monitor to watch him, or worst case, with a monitor and oxygen. She said unless he goes downhill when he gets home, or if he has any oxygen changes that we notice, then we will recheck with her sooner than later. As of right now, she is fine with seeing him in a month. She did say that he has changed a lot in a week, his color looks good, and he looks healthy. He is gaining weight, so hopefully his PDA will be smaller in a month. Last night, Craig said he had a rough night with him. He was very fussy, and wouldn't sit still. He was spitting out his bottle, and squirming everywhere. He had to have his nurse finish it for him. His arm catheter blew, so they had to replace it. They tried twice in his arm, and couldn't get it. Soo, it's back in his head. Sigh..o.v.e.r. i.t.  Hopefully he is having a better day today for them, and will eat tonight for us.

                                                                                    I am tired of being here

                                                                                  I just grew my hair back! Come on!

Brady
Brady has been doing fine. He was also a little fussy last night. He wants his bottle but gets so mad that he doesn't have it right away, that he spits it out, and shakes his head back and forth. Once he realizes it's in his mouth he calms down. There is not much new with him, he is just waiting on his brother to get home. Here are some silly pictures that we took yesterday.

                                                                                         This is my serious face...

                                                                                          I'm learning how to shoot webs like spiderman...

                                                                                         Oh goodness, I'm tangled in my own web!

I'll try and write tonight depending on when I get home. I think Patrick is there till Monday at least.

Later everyone!
The Connor Family