Thursday, June 28, 2012

Echo day

Hi friends, how is everyone?  We are good today. We were able to sleep in today a little after last nights visit. I actually got to sleep on my back last night, which is the first time in like 4 months. I forgot how much I missed it.  It's the little things, it really is.  I apologize now for any gramatical errors that come up in any of my posts. As we go back and read things that we have written in the last few weeks, we realize a lot of it is nonsense talk. Our brains are scramble eggs at this time. Please forgive us. So, we made it over to the hospital today, and there were a few changes.

Brady
Brady is doing well. Not only does this kid have big feet, he has like a full man beard. I kid you not. The nurse said he has been doing well today. He was quiet, but kicking his feet around. He did have an echo today to check his heart. His PDA is still there so they have decided to start him on his 2 course of heart meds. They said that he can get up to 3 courses of it before they have to decide on surgery or not. He received his first dose tonight. His labs were good today, platelets were up, so he did not need a transfusion today. Sweet. Also, his blood gases were fine. Their nurse said that tonight, or tomorrow, should be the last dose of antibiotics they receive too. He did lose an ounce. He is back to 1 lb 7 oz, but they are not worried, the weights are expected to go up and down. Otherwise she said he is doing okay.
Patrick
Patrick was also quiet today. He did start to wiggle around a bit while we talked to him. He is off of his Dopamine at this time. His oxygen was also lowered today. They also did an echo on him this afternoon while we were there. His heart murmur has become larger. He had a very small one that they were not worried about, so they didn't start him on meds.  However, since it has opened more, they decided to start him on the same meds as Brady. I believe its called Indocin. He received his dose tonight too. His labs were also good tonight. Platelets were up too, so he didn't need a transfusion either. Double sweet. He is still on his Fentanyl to keep him calm with the osc. vent. They said that he also lost an ounce. He is 1 lb 1 oz.  She did say that he urinated so much that they had to change the blanket underneath him. That kid likes to flood things. He is also going to probably receive his last dose of antibiotics tonight or tomorrow.
I did put a link about PDA on the home page. I don't know if it's all correct but it explains it well. Thats pretty much the word from the Connor house.  Good night all!

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